Receiving a dementia diagnosis can feel overwhelming for both patients and carers. The first few months can be a whirlwind of emotions and questions, but you’re not alone. This page is here to help you understand what to expect, find practical advice, and discover support as you begin this new chapter together.

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Adjusting to a New Reality

It’s normal for both carers and people living with dementia to experience a mix of emotions after diagnosis: relief, sadness, confusion, or even anger. Take time to let the news settle. Remember—there is support available every step of the way.

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Practical Steps for the Early Months

The period immediately after a diagnosis is about gathering information, setting up support, and looking after both practical and emotional needs. Here are some first steps that can help you move forward with confidence:

• Speak to Your GP and Care Team: Schedule follow-up appointments to ask questions, discuss treatment options, and talk about any concerns.

• Begin Planning Ahead: Consider preferences for future care, and discuss legal and financial matters such as lasting power of attorney or benefits entitlement.

• Organise Paperwork: Keep a diary of symptoms, appointments, and important contact details. Having everything in one place reduces stress and makes things easier during appointments.

• Contact Local Support Services: Reach out to memory clinics, Admiral Nurse services, or dementia-friendly community groups. These can provide practical advice, emotional support, and a listening ear.

• Explore Financial Support: Check eligibility for Attendance Allowance, Carer’s Allowance, or council tax discounts. Organisations like Carers UK offer excellent guidance.

 

Looking After Emotional Wellbeing

Emotional reactions are complex and unique to every individual and family. Here are some ways to look after yourselves:

• Share Your Feelings: Talk openly to each other, trusted friends, or family members. Many find it helpful to connect with professional counsellors or peer support groups.

• Stay Socially Connected: Try not to let the diagnosis lead to isolation. Keeping up with social activities or routine hobbies can benefit mood and mental health.

• Take Breaks: It’s normal for carers to feel a mix of guilt and exhaustion. Remember, taking time to rest isn’t selfish—it’s essential to keep going.

• Celebrate Small Wins: Enjoy time together, notice the good days or special moments, and find joy in everyday experiences.

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Remember - Take Each Day as It Comes

In the first months after a dementia diagnosis, it’s important to go at your own pace. Ask for help when you need it, make use of available resources, and try to keep routines that support your wellbeing. You and your loved one are not alone—support, advice, and brighter days are always within reach.

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